Tuesday, December 30, 2014

Christmas 2014

This Christmas has been very low key. Lots of days spent in hospitals with Nanny May and Ellie. Thankfully its almost over and we can get back to normal. Nanny May finally came around and it looks like she will make a full recovery from her fall and Ellie is doing well on chemo. Here's to 2015, Happy New Year to you all x x x

Saturday, December 13, 2014

Doing great

All is going really well for Ellie right now. Ellie couldnt have chemo last week because of bloods but was ok for it this week. Weight right now is 29.2 kg, a couple of kilos down from the starting weight but nothing to worry about. 
Ellies Nanny May is in hospital at the moment after having a bad fall. Lots of prayers for May right now. 

Sunday, November 30, 2014

Baobab Coffee

Ellies appetite hasn't been effected so far. 
Waffles - Now you see them......now you dont

Saturday, November 29, 2014

Toy Show

Well another treatment done. Ellie is doing well right now. A bit of weight loss but other than that all is good. Ellie, Hazel and their friends got second place for a school project this week. It was based on bacteria. Well done girls. We all watched the Toy Show this weekend, it was great fun. Ellie is getting ready for Christmas and the decorations will be put up this weekend. Talk soon......

Friday, November 21, 2014

2 down 50 to go

Ellies first trip back the day ward for treatment since October 2013. All the staff were so suprised to see her again. The nurses and staff are do friendly. Rose is still there and hasnt changed a bit. Pascal is growing a mustache for Movember, he looks super cool. Thank you for the cards that Ellie received this week. We will respond to everyone as soon as we get a personal card printed. 

Saturday, November 15, 2014

1done 51 to go

We'll here we go again. Ellie eventually went into theatre on Friday afternoon. That was a very long day, all that waiting around.........and hungry.

Anyway, Freddy line was inserted and Ellie got her first dose of chemo on Friday night.
um stayed over night with Ellie while dad went home to look after Gus and Aaron. Leah stayed in a friend's house.

Dad went back into the hospital on Saturday morning to collect Ellie and mam.

Ellie is home now on the sofa watching Hotel For Dogs.

Talk soon.

Tuesday, November 11, 2014

Bad news

It's been a long time since we've updated the blog. I'll quickly explain what's happened over the last 18 or so months then I'll update you on the present situation.

Ellie's 18 month chemo treatment went very well. We really couldn't have asked for better.
Ellie didn't miss any of the treatment schedule. There was plenty of sickness, hair loss/thinning, blood transfusions, school missed and tears but she coped very well. Finally on October 8th 2013 Ellie was given her final dose of chemo.

Since then there's been holidays in Italy, New York, had a fantastic Christmas and lots of smiles.
We've had one positive MRI scan but unfortunately just over a year after chemo finished we got a call from Ellie's oncologist to say that the tumour is active and action must be taken.
Following a discussion with Dr. Capra we have decided on a 12 month chemo treatment schedule beginning very shortly.

To say we are gutted by the news is an understatement, we are devastated.

We would like to thank everybody for their support during Ellie's first chemo schedule. A special thank you to Make A Wish Foundation and Aoibheanns Pink Tie.

Back shortly with updates of treatment.