Tuesday, November 11, 2014

Bad news

It's been a long time since we've updated the blog. I'll quickly explain what's happened over the last 18 or so months then I'll update you on the present situation.

Ellie's 18 month chemo treatment went very well. We really couldn't have asked for better.
Ellie didn't miss any of the treatment schedule. There was plenty of sickness, hair loss/thinning, blood transfusions, school missed and tears but she coped very well. Finally on October 8th 2013 Ellie was given her final dose of chemo.

Since then there's been holidays in Italy, New York, had a fantastic Christmas and lots of smiles.
We've had one positive MRI scan but unfortunately just over a year after chemo finished we got a call from Ellie's oncologist to say that the tumour is active and action must be taken.
Following a discussion with Dr. Capra we have decided on a 12 month chemo treatment schedule beginning very shortly.

To say we are gutted by the news is an understatement, we are devastated.

We would like to thank everybody for their support during Ellie's first chemo schedule. A special thank you to Make A Wish Foundation and Aoibheanns Pink Tie.

Back shortly with updates of treatment.


  1. I was gutted to see your blog appear in my side bar. I'm so sorry. Ellie, you did it once, you can do it again. All we can do is go with the flow and hope someone up there is watching and helping. Ellie's family: you are strong, I know you are weary and afaid but you are strong and we are all with you, holding you all in our hearts xx

  2. Thank you so much for the kind words. Ellie begins treatment tomorrow (Friday), into theatre early to get the hickman line in then treatment begings more or less straight away.