Carlow weekend

Hi all,

Ellie had a visit to the hospital this morning. Bloods are good, dressings changed and no more hospital visits till next Monday.

Ellie took a small break to County Carlow at the weekend. We all had a great time, Aaron and dad done some go karting and we all played bowling.

Ellie spent some time in the swimming pool but only up to her hips.......cant get Freddie wet.

Ellie really misses being able to jump and splash in the pool. When Freddie is finally taken out next year maybe we will have a big pool party to celebrate.

I'd just like to give a short mention to Abbies Army, www.abbiesarmy.co.uk

This is a charity set up by the proud parents of a beautiful princess named Abbie.

Brave Abbie lost her battle against a rare, incurable and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in September 2011.

Abbies partents set up this trust in honour of their daughter, please take a few moments to view the website.

Here are some photos from Carlow, one of Ellie looking very cool and another one of Ellie and dad waiting for the bowling ball to strike the pins. 

I'd say that one was a strike, what do you think Ellie???

Chemo week

Hi everybody.
Two visits to hospital this week, bloods and dressings on Monday the Chemo on Tuesday.

Tuesday was a very long day in the hospital. Ellie took a bit of a turn from the anti sickness medicine she got in Our Ladies.
She is doing a bit better now but is still a little out of sorts.
Three or so weeks till her first MRI since Chemo began, hopefully the results will be positive.

Tuesday was one of the more somber days in Our Ladies Hospital, lots of very sick children in the ward that day. More than usual I thought and there was no Clown Doctors or Magicians walking the ward to make us smile. Hopefully they will be back to brighten every bodies day as soon as possible.

Ellies birthday next month and she has asked for a bicycle as she finally learnt how to cycle a bike without stabilisers. Mam and dad will be bringing Ellie out to choose the right bike soon and something tells me its probably going to be pink in colour.

Once again thank you to everybody for the lovely cards and letters, and also for your continued support throughout this journey.

Talk next week.



 

Smile

Hi all,
Ellie just had bloods and dressing change this week so nothing out of the ordinary to report this week.

Ellie is in good spirits but seems to be getting very tired these evenings. She's been first to bed a lot this week which is not like her.

The hospital have put in place a new schedule for our weekly treatments which will see us having to spend extra time in the hospital.

Ellies hair is beginning to grow back on top ever so slightly.
Here is a photo of Ellie sitting on a very unusual looking bench in Donacomper Cemetery in Celbridge.
Ellie and daddy often go there to pay our respects.

 

So far so good

Hi all, before I start I'd like to apologies for the lack of an update last week.
Ellie was very unwell after chemo last week and had to go back into hospital. She spent the night on St. Johns Ward and 24 hours later she was much better thankfully.
On the upside Ellie got to see the magic show before she left the hospital, Ellie and the other children laughed so much their stomachs were sore.

To the staff on the ward and Mr. Magic a big thank you.
Laughter is a fantastic medicine.

Thankfully Ellie has just begun another short break so this week was just bloods and dressings, blood results were good.

We are looking forward to another three weeks chemo free and hopefully Ellie can put on a few pounds.

Thank you to everybody that has sent cards and well wishes. A special thank you to the ladies that made beautiful handmade cards.Below is a picture of just some of the hand made cards Ellie received.

We also got to see the Lorax 3D last weekend.
A great movie with plenty of laughs.

All going well

Ellie back in hospital yesterday, bloods are borderline and we need to keep a close eye on Ellies temperature. Ellie has a slight touch of a cold/flu so hopefully she can shake it off without having to go into hospital.

Hair is getting thinner but with the help of bandannas and some pretty cool hats Ellie is looking as beautiful as ever.

On another note Ellie went to Croke Park to see Dublin play Wexford with dad, brother Aaron and big sis Leah last weekend.
We all had a great day and the Dubs won.............again.

Here are some pics of Ellie and Leah doing Jedward jumps on way to the match.
Aaron is looking on pretty embarrassed in the background.

Talk soon.

Summers here

Not much to report this week.
Went to hospital this week, got dressing changed and had bloods taken. Blood result was good even though Ellie did look a bit unwell. No chemo this week thank God.
Ellie going to go to school for some of the last few days before the summer break.

Hopefully we get some good weather, talk soon x x x x

Chemo 19/06/2012

Well, that three week chemo break flew in.
Ellie put on a little weight in the three weeks(Pub lunches, frys for breakfast and loads of treats), you can see from our previous post that we all went to County Clare for a few days. 

Chemo went well yesterday although we were in the hospital all day. The day ward was very busy and very understaffed for the quantity of sick children present.
Ellie is very tired and weak at the moment but hopefully in a few days she will begin to come around again.
Hopefully she will make it back to school for a few days before the summer holidays begin.

Ellies hair has gone very thin and she wears a hat at all times but it shouldn't get much worse than it is now and hopefully will get better in time.

Talk in a few days x x x