Ellie giving Chemo the oul 1 - 2

Hi all, very sorry for not keeping you posted these last few weeks.

Ellie is doing great and is currently on a three week chemo break. Three weeks of chemo begins next Tuesday but Ellie is in good form at the moment and is ready for it.

Ellie had a blood transfusion two weeks ago as her blood stats were very low. All is well now, and a huge thank you to all the men and women that take the time to give blood. It really does help sick children and adults, and in some cases it can save lives.

School is going well at the moment and Ellie is attending school most days (bar the week of the blood transfusion).

We just had a look at the calendar this week and noticed that all going well Ellie will be on a break from chemo during the Christmas and New Years holidays. She will still need to attend weekly but no chemo.
Happy days!!!!!

Will sign off for now, talk soon.
Here are some pics of Ellie recently.

Happy Birthday Miss Ellie

Well after the good news of the positive results from Ellies MRI, what better way to celebrate than with a birthday. Ellie will be 9 years old on Monday the 17th of September.
We had a lot of Ellies friends over to help us celebrate on Saturday afternoon. We had lots of sweets, cake, pizza and hot dogs.
We organised Little Miss Party Nails for the girls, Jacqui and Elaine kept the girls entertained by doing lots of lovely nail art, tattoos and jewellery making.

Ellie started maintenance chemo last Tuesday September 11th, all went well and without any sickness.
Her chemo sessions will be three weeks on then three weeks break and so on till September 2013.

A big thank you to everybody that has sent get well cards, birthday cards and presents to Ellie recently.
They have lifted Ellies spirits and put a smile on her face.

Talk soon.

Stable

Well we got a call from Our Ladys giving Ellie good results from the MRI she had last week.
Growth in the tumor has stalled and there may even be a very slight decrease in the size of it.
This is the best news we could have got, Ellie has gone through a lot these last few months and although this doesn't shorten the course of chemo. It means that we can plough into the next 12 months and a positive result is more likely after this MRI.

Ellie is back in the hospital for chemo tomorrow, she begins a twelve month period of three weeks of chemo followed by three weeks off and so on.

Thank you to everybody for their prayers and well wishes recently.

Here is a photo of Ellie in her school uniform with a little teddy bear.
The teddy bear was made by daddys friend Breege, thank you so much Breege.

Upcoming MRI

Hi, Ellie has an MRI scheduled for tomorrow Thursday the 6th.
Wont get results till early next week when she is in for Chemo.
Its going to be a long weekend for mammy and daddy.
Prayers please for a smooth MRI and positive results.

Carlow weekend

Hi all,

Ellie had a visit to the hospital this morning. Bloods are good, dressings changed and no more hospital visits till next Monday.

Ellie took a small break to County Carlow at the weekend. We all had a great time, Aaron and dad done some go karting and we all played bowling.

Ellie spent some time in the swimming pool but only up to her hips.......cant get Freddie wet.

Ellie really misses being able to jump and splash in the pool. When Freddie is finally taken out next year maybe we will have a big pool party to celebrate.

I'd just like to give a short mention to Abbies Army, www.abbiesarmy.co.uk

This is a charity set up by the proud parents of a beautiful princess named Abbie.

Brave Abbie lost her battle against a rare, incurable and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in September 2011.

Abbies partents set up this trust in honour of their daughter, please take a few moments to view the website.

Here are some photos from Carlow, one of Ellie looking very cool and another one of Ellie and dad waiting for the bowling ball to strike the pins. 

I'd say that one was a strike, what do you think Ellie???

Chemo week

Hi everybody.
Two visits to hospital this week, bloods and dressings on Monday the Chemo on Tuesday.

Tuesday was a very long day in the hospital. Ellie took a bit of a turn from the anti sickness medicine she got in Our Ladies.
She is doing a bit better now but is still a little out of sorts.
Three or so weeks till her first MRI since Chemo began, hopefully the results will be positive.

Tuesday was one of the more somber days in Our Ladies Hospital, lots of very sick children in the ward that day. More than usual I thought and there was no Clown Doctors or Magicians walking the ward to make us smile. Hopefully they will be back to brighten every bodies day as soon as possible.

Ellies birthday next month and she has asked for a bicycle as she finally learnt how to cycle a bike without stabilisers. Mam and dad will be bringing Ellie out to choose the right bike soon and something tells me its probably going to be pink in colour.

Once again thank you to everybody for the lovely cards and letters, and also for your continued support throughout this journey.

Talk next week.



 

Smile

Hi all,
Ellie just had bloods and dressing change this week so nothing out of the ordinary to report this week.

Ellie is in good spirits but seems to be getting very tired these evenings. She's been first to bed a lot this week which is not like her.

The hospital have put in place a new schedule for our weekly treatments which will see us having to spend extra time in the hospital.

Ellies hair is beginning to grow back on top ever so slightly.
Here is a photo of Ellie sitting on a very unusual looking bench in Donacomper Cemetery in Celbridge.
Ellie and daddy often go there to pay our respects.